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Sunday, July 26, 2009

Finally home!

Kailey is finally home with us! We are so excited to have our family together under one roof. Now that my commute to the hospital is over I am slowly (very slowly) trying to figure out her real schedule. They had her on a 3 hour feeding time but she likes to sleep more than she likes to eat so in the short two days she has been home I have managed to already mess up the schedule they had. Oh well, at least I do pump every three hours because she is too lazy to even open her mouth. On Tuesday she has an appointment with her pediatrician and we should be getting some guidance (hopefully) or a referral to a pediatrician that specializes in children that have Down syndrome.
On Friday, we got the full report for the Chromosome test. I had hoped Kailey would be in the mosaic Down syndrome category but it only happens 1% of the time. She is in the Trisomy 21 category.
Kailey has been the delight of her siblings so now we need to protect her from the vast amounts of love she is getting and will be getting around here.




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